Third Nipple

Well, my third nipple (as my daughter calls it) is back, it’s actually another lesion.  I went to my Rheumatologist to finally start treament for my (what they are now calling) breast disease on Tuesday and it wasn’t there.  And as of Tuesday night it was already appearing.  I already had an appointment scheduled Wednesday with my breast surgeon so I had her check it out and she wanted me to go see my rheuma (my new shortened word) right away since I had just started this heavy treatment (more on that later).  So I was able to get back into him on Friday and his first comment was “yea, that’s what granulomatous is!”
But my biggest concern in going back to him was the fact that he originally couldn’t treat if I had any active lesions.  And since we had just started treatment and now one was starting I was scared we would have to stop treatment.  Thank the Lord I don’t have to.  He said that at least when I started it (for one dose) that I had no lesions and as of now it hasn’t “broken open” so we are good.  And if we had to stop treatment for every time I got one, we would never be able to treat me. 
Treatment right now will consist of a low dose of Prednisone/steroids for six weeks until the main drug kicks in. (Though I am on a heavy dose to try and thwart the lesion but only for 6 days.)  And the other drug, surprisingly, it’s main use is for people who have received kidney transplants and it is used so there bodies don’t reject the kidney. 
I don’t know how long I will have to be on that med.  I did ask the doctor and he said it may be the rest of my life.  So now along with the fibro I now have this stupid breast disease.  As I have said before, I just want my boobies back. 
Oh well, I know things could be so much worse and the Lord will only give me as much as I am able to handle. 

Sunday Reflection

 

“Come to me, all you who are weary and burdened, and I will give you rest.  Take my yoke upon you and learn from me, for I am gentle and humble in heart, and you will find rest for your souls. For my yoke is easy and my burden is light.”     Matthew 11:28-30

My heart is just so burdened right now.  I just can’t explain it.  I know so many people that are suffering and going through so many hard, life threatening medical issues right now.  My heart just aches for them and their close family members.  I just don’t know what to do.  So I have really tried to commit myself to pray.  I am trying to pray as often as I think of them.  And it’s definitely why I keep the attitude that my situation could be so much worse.
The Lord is the only one who knows what each of these people need in there specific situations.  And I pray that they would each find  the strength to keep relying on Him. 

For I have given rest to the weary and joy to the sorrowing."  Jeremiah 31:25

Comfort

***Ok, I am a few days back logged, so I will try and catch up.****

I receive the K-Love verse of the day every morning.  And a few days after the court hearing I received the following verse.  It gave me some comfort and hope that the Lord is still working in my case.

O Lord, hear my plea for justice. Listen to my cry for help. Pay attention to my prayer, for it comes from honest lips.         Psalm 17:1

 My prayers were always for justice and that I would be as honest as I could possibly be.  Thanks Lord for the encouragement.

Fibro Friday: Court Update

Yes, I know it's Saturday, but I was too tired yesterday to update the blog. 

Thursday went very well.  The judge was very friendly and cordial.  He made me feel comfortable and I wasn’t barely nervous.  They had a occupational witness that the court brought in and he was very friendly and smiled which was nice too.  The hearing was supposed to last 30-45 minutes and we ended up being in there for an hour.  I was asked a lot of questions about medications I am on, past medications and their effectiveness, past job experiences, current daily life, current pain, etc. 

The judge was very throughout with his questions.  Then my lawyer was allowed to ask me some questions too.

When it was all said and done, the judge said that there was “significant evidence” that I was disabled.  The occupational expert testified that I would not be able to function in the working world.  We (my lawyer, hubby, and I)really believe that the judge would have ruled in my favor at that time if he could.

The only issue (which we knew going in) was that there is a specific date that they have to go back and prove disability on (has to do with 5 years after the last date I actually worked).  And the judge didn’t feel that there was enough evidence surrounding that date.  BUT he is giving my lawyer 30 days to come up with a brief outlining more supporting evidence for that date in question.  If we can get that date in question taken care of, my lawyer feels that we should be good. 

We went into the day wrapped in prayer and completely felt it.  We greatly appreciate all those who were praying.  It made such a difference.  We are continuing to pray that we can get the rest of the evidence that we need and that a doctor of mine will cooperate. 

All in all it was a great day and things couldn’t have turned out any better.  We are still fighting the battle, but the end it way closer than it ever has been.   The judge then asked the occupational expert some questions about my work ability back then and my work ability currently.

Big Day

Today is a big, important day for me, my family, and my Fibromyalgia.  It’s a day to go prove myself in court and hope and pray that they find in favor of me.  Find in favor that I am disabled enough not to be able to work.
I already know deep down that I am disabled and that I am not able to work and I really don’t need a judge to give me the approval for me to finally believe it.  What I do need is for a judge to agree to let me get paid for it. 
I/me and ML are going into this day wrapped in prayer.  We fully believe that God is in complete control.  We trust that whatever the outcome is that He has orchestrated it.  We have prayed that it would be God’s will that my disability be approved. We have prayed that God have favor on us and provide this for our family.  We have prayed that we receive an immediate answer and do not have to wait for the judge to make a decision. 
I feel calm and not nervous.  I do want to get it over with, but I am ready and at peace.
So thank you to all who are praying.  The prayers are so greatly appreciated.  Here’s hoping to a great, successful day tomorrow. 

Kid Funny: Boy Crush

You are probably going to see a lot of these coming up.  I want to post some cute or funny things my girls have been saying before I forget them.  So enjoy!

My Miss G went with ML and I to a wedding party for my brother and his new bride that my mom and dad were throwing.  During the party, one of my brother's friends befriended Miss G and let her hang out with him all night.  He was so sweet to her and was just great with her. 

So just the other day Miss G asks me:  "Mommy, when will I see that boy that I played with at T and N's party?" And I responded with "I'm not sure."  She then turns to her bigger sister and tells her the this guys was "her boy for the night."

I think she has had her first guy crush.  He is a super nice guy, just too bad there is such a ginormous age difference. 

Boob Update

All I can say is "Darn Boob!"  The left side is flaring really bad right now.  When it flares it starts affecting the arm that is on the same side and slowly moves to the other arm and then my whole torso.  It becomes so bad it's hurts to walk or move.  Last time this happened they were able to put me on steroids to make the inflamation go down, but not this time.  I still have a lesion that hasn't healed (from the Granulomatous Mastitis) and as long as I have it they can't use the steroids, there is too big of risk for infection.  I am hoping in the next week it will be healed enough that they can get me started on it to get this boob back to pain free and back to normal size. 

When oh when will this stupid infection leave my body?